Sep 21 2023 41 mins 3
In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older.
Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded by the Lupus Foundation of America, the Rheumatology Research Foundation, the Childhood Arthritis and Rheumatology Research Alliance (CARRA)/ Arthritis Foundation, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH.
Resources:
- Find out more about lupus and teens
- School survival guide for teens with lupus
- Helping teens learn to cope with lupus
- SELF app, for people 18+ in the U.S.
Mentioned resources:
- Take a pain check, a chronic disease podcast meant to support youth with rheumatic diseases
