Jul 22 2021 71 mins
***TW: Joey very briefly discusses suicide in the second half of the episode. Nothing graphic, but it is brought up*** This week's interview is with Joey Suchanek (@joeysooch on Instagram), who is an aspiring influencer with a very rare, genetic disorder called FOP; FOP stands for Fibrodysplasia Ossificans Progressiva. FOP is a rare disease in which a person's muscles, tendons and ligaments turn into bone via flares. Joey and I discuss what makes the rare disease community unique, various ways to view beauty standards in social media, and much more! Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! And follow me on Instagram @risforrarepodcast! Joey Suchanek on Instagram -- @joeysooch Joey's YouTube - https://www.youtube.com/channel/UCjTeVF_oFCSJSslY9MkXPMQ --- Send in a voice message: https://podcasters.spotify.com/pod/show/annie-watson/message