R is for Rare

This week’s interview is with Brenna Jones, who is a bookworm, Instagrammer, and teenage rare disease and disability advocate! She has many conditions, but the main rare disease we focus on throughout the episode is Median Arcuate Ligament Syndrome, or MALS. Brenna also has hypermobile Ehlers-Danlos Syndomre, POTS, New Daily Persistent Headache (NDPH), May-Thurner Syndrome, and Thoracic outlet syndrome. MALS is a rare disease that affects the celiac artery, which in turn causes GI and digestive issues. Brenna and I talk about academic accommodations with rare diseases/disabilities, comparison, vaccines, books and TV shows, and much more!! Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! And let me know what you think of the podcast by leaving a review (it’s free)! Follow me on Instagram - https://www.instagram.com/risforrarepodcast/ Follow Brenna on Instagram - https://www.instagram.com/chronicallybrenna/ Brenna’s Beacons page - https://beacons.page/chronicallybrenna/ Follow Brenna on TikTok - https://www.tiktok.com/@chronicallybrenna? Follow Brenna on Twitter - https://twitter.com/chronicallybren/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/annie-watson/message