26. 2q37 Deletion Syndrome ft. Megan Freeman


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Aug 12 2021 60 mins  
This week's interview is with Megan Freeman, a greeting card creator and rare disease advocate! She has a very rare chromosomal disorder called 2q37 Deletion Syndrome, which causes delays in growth and development. For Megan, she didn't experience puberty until her late teens; she is also 1 of around 150 people with this disease. Megan and I discuss mental health as a rare disease patient, dating with a rare disease, all things advocacy, and much more! Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, Overcast, or wherever you get your podcasts! And follow me on Instagram @risforrarepodcast for more rare disease and disability content! Follow Megan Freeman on Instagram - @cardc.urator --- Send in a voice message: https://podcasters.spotify.com/pod/show/annie-watson/message