R is for Rare

After a few month hiatus (due to the craziness of senior year), this week’s episode is a new and very exciting rare disease podcast crossover episode! I was featured on The Rare Disorder Podcast back in September, and this is my interview with Shivani for R is for Rare! Shivani Vyas is a high school student, and the Founder and Host of The Rare Disorder Podcast, a podcast dedicated to spreading awareness for rare diseases and elevating the voices of those affected by them. Her personal connection to the community traces back to her grandmother, who was affected by a rare pancreatic cancer. Shivani started The Rare Disorder Podcast in March 2020, and today, she cross-podcasts, speaks at conferences, involves herself in research, and advocates for legislation through Young Adults for RDLA (Rare Disease Legislative Advocates) to pay tribute to her grandmother...a true rising star in our community. Outside of school, Shivani loves to spend time with friends, hike, explore the outdoors, and volunteer in her community. She hopes to study public health, public policy, and/or neuroscience in college next year. Shivani and I talk about location and rare disease treatments, how Instagram can be a unifying force, how she got into rare disease advocacy, and much much more! SUBSCRIBE to R is For Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! And follow me on Instagram @risforrarepodcast ! Shivani’s Links: Listen to The Rare Disorder Podcast on Spotify: https://open.spotify.com/show/1rNodLuZ2cgUlAw77rYWJN?si=Kdy3Uyy_SRKDYKjxKXfOBw&dl_branch=1 Follow The Rare Disorder Podcast on Instagram: http://instagram.com/therdpodcast Check out other platforms & initiatives: https://linktr.ee/theraredisorderpodcast Follow Shivani on Instagram: https://www.instagram.com/shivivyy/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/annie-watson/message