Apr 28 2022 44 mins 3
This episode explores what it means to take part in Parkinson’s research – from finding out more about clinical trials, to completing surveys about life with the condition.
Our first guest is Amelia Hursey, who lives in London, UK. Amelia recently joined the European Parkinson’s Disease Association – the only European Parkinson’s umbrella organisation – as Research Manager, and is passionate about informing members of the Parkinson’s community how they can learn more about research.
She is joined by Karl Wouters, based in Beerse, Belgium, who has worked in corporate communications and disease management programmes. Since being diagnosed with Parkinson’s six years ago, Karl has taken part in clinical trials – and is particularly enthusiastic about the importance of bridging the gap between researchers and patients.
Also joining is Shafaq Ali, a dentist who live in West Yorkshire, UK. Diagnosed with Parkinson’s in 2019, she is currently exploring the idea of taking part in research – and is looking for options to get involved that work for her.
Amelia, Karl and Shafaq discuss how people in the Parkinson’s community can find out more, explore some of the different ways of taking part in research – and share why asking questions is key.
This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions.
Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com
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