Feb 06 2025 45 mins 2
Cheryl and Tina emphasize the need for increased education, representation, and awareness about autoimmune conditions and treatment options to reduce stigma and support patients globally.
Cheryl and Tina also discuss Tina’s advocacy work, including her blog Own Your Crohn’s and contributions to South Asian IBD Alliance (SAIA), focused on creating community and amplifying patient voices across diverse populations.
See full episode show notes including a transcript here!
Episode at a glance:
- Tina's Diagnosis and Journey: Initial struggles with chronic illness and delayed acceptance of modern treatments like ostomies; challenges navigating cultural stigmas and family expectations in South Asian and other communities of color.
- Addressing Stigma and Cultural Barriers: The impact of cultural stigmas on seeking timely medical care; Advocating for education, awareness, and representation in autoimmune and chronic illness spaces.
- Advocacy Work: Founding Own Your Crohn’s to share her experiences and connect with others; Contributions to SAIA to amplify patient voices and support global IBD communities.
- Key Messages: The importance of community, education, and acceptance in improving quality of life for patients; Breaking barriers and promoting inclusivity in chronic illness narratives.
Medical disclaimer:
All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Episode Sponsors
Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!
Full episode show notes
Click here for full episode show notes including a video of this conversation and transcript.
