Feb 26 2025 40 mins
In this episode of the Kofkin Bond Podcast, host Tony Kofkin interviews Charly Stone, the CEO of Cure EB. They discuss Charly's journey from the UK to Australia and her transition into the not-for-profit sector. The conversation delves into the challenges of Epidermolysis Bullosa (EB), a rare skin disease affecting children, and the efforts Cure EB is making to find a cure. Charly shares insights into the organization's innovative approach to fundraising and the significant progress made in a short time. The episode highlights the resilience of children with EB and the ongoing need for support in the fight against this devastating disease.