Jun 27 2024 25 mins
Today we’re joined by not just one guest, but SIX special people who not only joined us for this podcast, but who generously gave their time over the past 7 months to create something really special.
Each one of these guys is passionate about helping and empowering people with Duchenne muscular dystrophy to find meaning, purpose, and be aware of all the possibilities in life that they can explore.
They’re working with our Team Joseph staff to plan out the first conference exclusively for older adolescents with Duchenne. They’re taking time away from their work, spending time with their friends and family, from school, and from their individual goals to make sure we create something powerful for others living with Duchenne.
And they know a lot about this because they all have Duchenne themselves. It’s been incredible to see and share in their enthusiasm, dedication, and passion as this conference has come together – whether you have a connection to Duchenne (or not!) this conversation is a beautiful example of purpose, generosity, selflessness and the building of community.
Welcome to this very special episode featuring the Planning Committee behind our conference titled “What Now? Possibilities in Adulthood with Duchenne” -- a conference FOR people with Duchenne, planned BY people with Duchenne.
This is one of the most heartfelt and earnest conversations we’ve ever had. You can literally FEEL the spirit and heart of this group! Let’s get started.
Each one of these guys is passionate about helping and empowering people with Duchenne muscular dystrophy to find meaning, purpose, and be aware of all the possibilities in life that they can explore.
They’re working with our Team Joseph staff to plan out the first conference exclusively for older adolescents with Duchenne. They’re taking time away from their work, spending time with their friends and family, from school, and from their individual goals to make sure we create something powerful for others living with Duchenne.
And they know a lot about this because they all have Duchenne themselves. It’s been incredible to see and share in their enthusiasm, dedication, and passion as this conference has come together – whether you have a connection to Duchenne (or not!) this conversation is a beautiful example of purpose, generosity, selflessness and the building of community.
Welcome to this very special episode featuring the Planning Committee behind our conference titled “What Now? Possibilities in Adulthood with Duchenne” -- a conference FOR people with Duchenne, planned BY people with Duchenne.
This is one of the most heartfelt and earnest conversations we’ve ever had. You can literally FEEL the spirit and heart of this group! Let’s get started.