Mar 08 2025 40 mins 2
I am so pleased to be back recording the podcast, thank you for your continued support. I am pleased to have returning guest Patrick Ussher join me on this episode.
Patrick Ussher has had ME/CFS for 7 years. He has written a book ‘Understanding ME/CFS & Strategies for Healing’. which is now available as an audible, ebook or paperback copy. Click on the link below to find out more.
In the book he communicates some of the latest, most exciting ME/CFS research as well as strategies he has used to improve his quality of life. The book is laid out with a broad audience in mind, inclusive of those living with ME/CFS and Long covid, their families and/or carers and medical professionals. It contains links to the relevant research and chapter summaries which are really helpful.
In this episode of the podcast we discuss his book and go into more detail around the section of the book covering (PEM) post exertional malaise, and the research findings of Professor Klaus Wirth and Professor Carmen Scheibenbogen. This is an interesting conversation with light bulb moments. We discuss how PEM is a nemesis for so many living with these conditions, and what the research findings suggest is happening at cellular level. We touch on pacing in the absence of medical treatment and how important, although extremely challenging pacing is to avoid PEM.
Patrick, talks about mitodicure, a potential medication to treat patients with post exertional malaise. This is in its infancy, in terms of requiring funding and clinical trials, more information is available via the link in the show notes. To find out more about this and lots more have a listen to this episode.
Links from this episode:
More about Patrick: https://www.patrickussher.com
YouTube channel: https://www.youtube.com/@me-cfs-strategiesforhealing
To see the main options for buying Patrick’s book in ebook, paperback or audiobook: https://books2read.com/u/bOk9J0
Wirth’s ME/CFS pill ‘Mitodicure’: https://www.mitodicure.com
The first Wirth and Scheibenbogen paper on a ‘Unifying Hypothesis for ME/CFS':
My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information
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