James, our first male patient guest talks about his experience with Long COVID POTS, his perspective changes and managing life with a great sense of humor in the face of disabling illness. James insightfully provides several metaphors to describe his experience.

Topics:

• Connecting with other patients and the power of strangers with shared experiences


• Impact of Long COVID, POTS on relationships


• Challenges faced, misconceptions of Long COVID patients

Find Us on Instagram: James @supercoxy, Ella @ellaeastin, Dysunderstood @dysunderstood

TikTok: @dysunderstood

We want to hear your story! Contact us: [email protected]

Thank you to Nurse Mates for supporting our community, providing compression and comfort footwear.

Some relevant definitions:

Long COVID (LC)- A clinically diagnosed condition characterized by persistent symptoms and long-term health issues following a COVID-19 infection; also known as post-acute sequelae of SARS-CoV-2 (PASC).

Postural Orthostatic Tachycardia Syndrome (POTS)- A clinical diagnosis where patients present with excessive increase in heart rate upon assuming upright posture or physical activity like dizziness and palpitations. (Adult diagnostic criteria requires 30 bpm heart rate change when going from supine to upright position)

For a transcript of this episode, click here.