Nov 25 2024 37 mins
As the Irish general election approaches, a community of patients, advocates, researchers and experts are campaigning for better care for cancer patients.
From patient support to finances and wellbeing, Irish patients deserve the same availability of care as any other country in Europe, including access to life-changing clinical trials. We also hear the positive stories of those who’ve been able to access trials and about incredible patient-led initiatives that are improving quality of life for those facing this illness.
Our guest, Averil Power, has been a voice for those affected by cancer previously as a politician and now as CEO of the Irish Cancer Society.
THINGS WE SPOKE ABOUT
● Challenges and Priorities for the Upcoming General Election
● Importance of Cancer Trials and Advocacy Efforts
● Patient-Led Research and Personal Stories
● Overcoming issues within the health system such as time and GDPR
● Renewed focus and determination to drive improvements in cancer care and support
GUEST DETAILS
Averil Power has been Chief Executive of the Irish Cancer Society since January 2018. She has over fifteen years’ leadership, policymaking and campaigns experience, having served as CEO of the Asthma Society of Ireland, an elected member of Seanad Éireann and a policy adviser in several Government departments.
Averil holds a Degree in Business, including non-profit management, from Trinity College Dublin and was President of Trinity Students’ Union from 2001 to 2002. She also has a Diploma in Law from the Kings Inns.
https://www.cancer.ie/about-us/about-the-irish-cancer-society/who-we-are/our-leadership
MORE INFORMATION
Cancer Trials Ireland is a registered charity and the leading cancer research trials organisation in Ireland. It aims to provide every patient with cancer access to high-quality and potentially life-altering cancer trials and to make Ireland a highly attractive location to open cancer trials.
Since 2000, 623 cancer trials have opened in Ireland, with more than 33,500 patients taking part. In 2022, a survey of public attitudes revealed three in five people in Ireland would take part in a clinical trial. Almost all cancer clinical trials available in Ireland are listed on the Cancer Trials Ireland website: www.cancertrials.ie/open-trials.
Cancer Trials Ireland is partly funded by the Health Research Board and the Irish Cancer Society. It also receives income from pharmaceutical companies and international research groups, as well as through philanthropic giving and donations from members of the public.
Since 2017, Cancer Trials Ireland has rolled out an annual campaign (Just Ask) to promote public awareness and understanding of clinical trials and associated issues. Just Ask 2023 is support through unrestricted grants from AbbVie, Bayer, MSD, Novartis, & Pfizer.
KEYWORDS
#cancertrials #IrishCancerSociety #clinicaltrials #patientadvocacy #funding #cancerresearch
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