Feb 02 2025 54 mins 1
In this week’s episode, Lauren and Rina sit down with Brandi Amiss-Towler as she shares the extraordinary story of her son Caspian’s birth, the challenges of his early days, and how her experiences have driven her to retrain and pursue a career in law. Brandi offers a candid and raw account of the early days, navigating a complex medical journey with a large number of professionals and an extended hospital stay. She also reflects on what motivated her to take on her impressive journey to courtroom advocacy and shares some wise words of advice for other parents. What an incredible women!
Content Warnings
Strong Language warning
Prenatal diagnosis
Infant death
Birth stories
Guest Biography
Brandi Amiss-Towler is originally from Kansas in the USA, but has called London her home since 2004. She is mother to two boys, her eldest is now 23 and her youngest, Caspian, is five. Caspian was born with a rare teratoma in his jaw. He has had significant surgeries, a tracheostomy and is PEG-fed. From the start, Brandi has been a fierce advocate for ensuring his needs are met. A month before Caspian was discharged from the hospital at 20 months old, she began law school to train as a barrister. Now, having been Called to the Bar, she practices social security law.
Useful resources
Martha's Rule: says that where a parent questions the professional opinion of a professional, they have a right to request a review by a separate team
https://www.england.nhs.uk/patient-safety/marthas-rule/
Council for Disabled Children
https://councilfordisabledchildren.org.uk/resources/all-resources
Caudwell Children
https://www.caudwellchildren.com/changing-lives/how-we-can-help/
Provides services, funding, and training for families and children
Mencap
Provides advice on benefits, housing, health and education. I've always found them to be very knowledgeable.
Disability Rights UK
Produces the Disability Rights Handbook which provides guidance on disability benefits and social welfare law, also provides advice and other resources
Disability Action-There is a disability hub in most boroughs. Just google Disability Action and see if there is one in your borough.
Scope
https://www.scope.org.uk/advice-and-support
Provides services, advice and support for disabled children and their families
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