Developing a Community-Led Rare Disease ELSI Research Agenda


Episode Artwork
1.0x
0% played 00:00 00:00
Feb 12 2024 23 mins   3
developing-a-community-led-rare-disease-elsi-research-agenda

In this episode, Dr. Jeremy Garrett is joined by Courtney Berrios and Kimberly Freeman. They will be discussing the topic of pediatric rare diseases and the development of a community-led research agenda for better understanding the needs and priorities of patients and families living with rare diseases.

Click here to read Dr. Garrett's article focusing on Developing a community-led rare disease ELSI research agenda