Sep 29 2024 39 mins
In Episode 112 of White Canes Connect, hosts Lisa Bryant and David Goldstein welcome Bailey Bostelman, Regional Field Director for the Foundation Fighting Blindness (FFB). The episode highlights the upcoming VisionWalk in Philadelphia on October 5th, where Lisa will be participating. Bailey shares insights into the mission of FFB, which has raised over $915 million to fund research for inherited retinal diseases like retinitis pigmentosa and Stargardt disease. She emphasizes the importance of community education, connecting those with low vision to resources, and the organization's no-cost genetic testing program. This initiative helps individuals with inherited retinal diseases better understand their diagnosis and access potential treatments.
Bailey also discusses FFB’s VisionWalk, which began in 2006 and has since raised over $64 million. The Philadelphia walk, part of FFB's annual fundraiser, aims to raise $150,000 to support research and public health education. The episode also highlights FFB’s professional outreach to medical professionals to bridge the gap between diagnosis and available resources. Listeners are encouraged to participate in the walk, donate, or get involved in other fundraising and volunteer efforts.
Show notes at https://www.whitecanesconnect.com/112
Learn More & Connect with the Foundation Fighting Blindness
Find other VisionWalks at https://www.fightingblindness.org/visionwalk. Contact the FFB at [email protected]. Listen to episode 057 that featured the Foundation Fighting Blindness at https://traffic.libsyn.com/whitecanesconnect/white_canes_connect_057_post.mp3. Support Lisa’s VisionWalk at https://give.fightingblindness.org/fundraiser/5713819.
2024 NFB of PA State Convention
Registration is open for this year’s State Convention in Erie from 11/7 to 11/10. Learn more at https://www.NFBofPA.org/2024/. Links are there to register as an attendee, exhibitor, and sponsor. Other links include meal option descriptions, Senior Possibilities Fair registration, and phone numbers to make your hotel reservations.
An Easy Way to Help the NFB of PA
Support the NFB of PA with every purchase at White Cane Coffee Company by going to https://www.whitecanecoffee.com/ref/nfbp. When you use that link to purchase from White Cane Coffee, the NFB of PA earns a 10% commission! Share the link with your family and friends! Listen to Erin and Bob Willman from White Cane Coffee on episode 072 of White Canes Connect.
Donate to the NFB of PA
If you want to donate to the National Federation of the Blind of Pennsylvania, visit https://www.NFBofPA.org/give/.
We Want to Hear Your Story
Reach out with questions and comments, or share ideas! We want to hear from you. Call us at (267) 338-4495 or at [email protected].
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