Even at the age of 7 Eric Buther's son Santiago was a graceful athlete but then he became clumsy and also was feeling tired and lethargic before he was diagnosed with DIPG in 2018. Santiago was able to go through an extended "Honeymoon" period after being treated at St Jude Children's Research Hospital but then he relapsed and after a stay at Cincinnati Children's Hospital he passed away on January 17th of 2020, while in 3rd grade.