Ability in disability from noma: neglected tropical diseases part 1


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Jan 30 2025 28 mins   4

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This two-part episode shines a light on the lived experiences of two remarkable individuals affected by NTDs. We explore firsthand how disability influences and affects their lives. In part 1, host Garry Aslanyan speaks with Mulikat Okanlawon, a survivor of noma in Nigeria and President of the Elysium Noma Survivors Association. Thanks to the tireless advocacy of Mulikat and other survivors, noma was officially recognized as an NTD by the World Health Organization in 2023. Claire Jeantet, an award-winning documentary filmmaker, speaks about collaborating with Mulikat over the past eight years to bring her story and the stories of other noma survivors to policymakers, academics and the public.

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