What if you could recognize early signs of health deterioration before it turns into a crisis? Join us in a conversation with the inspiring couple, Jeff and Catherine Pearson, as they share their remarkable journey navigating life with hydrocephalus. Jeff, who has managed this condition since birth, and Catherine, his devoted caregiver, reveal their story of resilience through multiple surgeries and health challenges. Learn how their nonprofit, Hydro With Hope, and their online initiative, Invisible Condition University, provide vital resources and support for those affected by invisible conditions.
Our discussion takes a deep dive into understanding the critical importance of proactive healthcare and the emotional and financial toll of unexpected medical emergencies. We explore Jeff's experience with sudden brain surgery and the lessons learned about listening to your body and recognizing symptoms early. Catherine shares her invaluable insights as a caregiver, emphasizing the importance of a supportive network. Through personal anecdotes, she illustrates the nuances of differentiating between various types of discomfort and the significance of addressing both physical and emotional needs.
We also explore the Pearsons' passion for fostering community and collaboration in healthcare. By integrating Western and alternative medicine, they advocate for a cooperative approach to care. Their creation of "My Hydro Warrior Story" serves as a testament to the power of storytelling and shared experiences in building a strong support system. Their dedication to empowering families with chronic conditions shines through as they share strategies for balancing family life while navigating the complexities of healthcare. Get ready to be inspired by their unwavering commitment to making a difference in the world of invisible conditions.
To watch our TV show Invisible Condition:
https://watch.e360tv.com/content/sc_29490_16217
Invisible Condition broadcasts LIVE every TUESDAY & FRIDAY at 10:00an MT and is available on demand
on FB & YouTube immediately after the LIVE broadcast has concluded. Available on the e360tv site
about a day later.
Watch Invisible Condition LIVE on Facebook:
https://www.facebook.com/profile.php?id=100091481468419
You can watch the show here and chat with us LIVE during the show)
Watch Invisible Condition LIVE on YouTube:
https://www.youtube.com/@InvisibleCondition/streams
To be considered as a guest for Invisible Condition, schedule a short discovery call with Jeff:
https://api.totalallinonesolutions.com/widget/bookings/invisibleconditiontv
To join our growing community at Invisible Condition University:
www.MyFreeGiftFromJeff.com
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/