Aug 17 2023 65 mins
Today, we're shining a light on a family's journey with their SKDEAS kid and the strength that it has carved out in them. Meet Jackie and Eddie Jones, the remarkable parents of Travis, who open their hearts to us about their path to diagnosis, the challenges they've faced, and the bonds they've built.
We journey with Jackie and Eddie as they navigate the complexities surrounding Travis's diagnosis. We unpack the medical challenges, such as tracheomalacia and eosinophilic esophagitis, that have become a part of their lives. We also step into the shoes of the Jones family as they maneuver through the school system and IEP process, shedding light on the nuances that come with educating a child with special needs. Eddy Jones provides a father's prospective and the importance of embracing vulnerability to support his family.
And we have some lighthearted content as the Jones Family prepares for the 1st Annual Travis' Troops Golf Tournament on October 15, 2023 in Plainview, Massachussets. Any support for the event is appreciated and they share some insight into organizing similar events to raise awareness and funds for rare disease.
Find out more at skdeas.org/events or email [email protected]
Please visit SKDEAS.org for more information about Skraban-Deardorff and how you can support our superheroes.