Sep 11 2024 63 mins
Mal de Debarquement Syndrome is a central vestibular disorder that typically arises following exposure to passive motion (i.e. boat, airplane, automobile, train, etc.). The characteristic symptom of MdDS is a constant sensation of rocking, swaying, and/or bobbing. On this episode of the ICU - "I See You" podcast, we connect with one of the leading researchers in MdDS and an MdDS patient who runs a support group!
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Dr. Yoon Hee Cha is an Associate Professor in the Department of Neurology with subspecialty training in neurotology. She joined the faculty of the department in July 2019 to pursue research on the application of non-invasive brain stimulation methods on the modulation of motion perception, treatment of vertigo, and enhancement of gait and balance. She developed the first neuromodulation-based clinical trials in mal de debarquement syndrome (MdDS). Her research revealed the importance of brain regions not traditionally thought to be part of the vestibular system in the creation of motion perception. Besides research on the use of non-invasive brain stimulation tools such as transcranial alternating current stimulation and transcranial magnetic stimulation, Dr. Cha sees patients in the neurology clinic with a focus on chronic headache, vertigo, and gait dysfunction.
Nancy Gray has lived with 24/7 symptoms of MdDS since 2019 after disembarking from an Atlantic Ocean crossing. After feeling like she was in continuous motion for three weeks, she sought medical help. In 2021, she worked with Dr. Sergei Yakushin at Mt. Sinai for a week of treatment, which improved her symptoms. Nancy continues to travel by boat, embracing her condition. Her hobbies include travel, playing the hammered dulcimer, watercolor, collage, writing, photography, genealogy research, and gardening. She has adapted her activities to continue enjoying them despite MdDS. Nancy also leads an MdDS support group, offering valuable insights and advice to others.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
#LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy