Nov 13 2024 53 mins
The year end holidays are probably the busiest time of year for social events. Family gatherings and work parties, special church services, and cocktail parties with friends. These are meant to be fun and festive, a time to eat, drink, and be merry. But events can often be overwhelming for people with vestibular disorders, with bright lights and lots of people talking loudly and all at once. How can you take part in the joy of the season while also taking care of yourself? Today we’re going to talk to a professional event planner whose job is to make large, busy events inclusive, as well as a vestibular patient, who has developed a strategy for being able to enjoy family gatherings.
Mal de Debarquement Syndrome is a central vestibular disorder that typically arises following exposure to passive motion (i.e. boat, airplane, automobile, train, etc.). The characteristic symptom of MdDS is a constant sensation of rocking, swaying, and/or bobbing. On this episode of the ICU - "I See You" podcast, we connect with one of the leading researchers in MdDS and an MdDS patient who runs a support group!
This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/
About the Guests:
Carol Rexroad Cannon lives with her husband Robert in Hendersonville, North Carolina. They worked together as United Methodist pastors for 35 years before retiring in 2021. Carol was struck with severe vertigo due to vestibular neuritis in 2016, which has since developed into PPPD. Vestibular rehab therapy has helped restore her balance. Carol enjoys hiking mountain trails near her home, visiting with family, and volunteering in the church and community to work for justice, peace, and wholeness.
Erika LaDousa has over 20 years of event planning experience, nine of those as the owner of LDS Events, an event planning company that focuses solely on supporting non-profit organizations. Erika also works as a fundraising consultant with Minneapolis-based Fladeboe Advancement. Erika lives in Edina, Minnesota with her husband and two daughters. She loves to travel, volunteer, and spend time at their family cabin in Wisconsin.
Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/
Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/
VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/
If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/
For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/
If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.
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