May 28 2024 54 mins
In a society often obsessed with intelligence, can we reimagine a good life that encompasses joy, meaning, and respect for all? What does it mean to respect and support individuals with profound intellectual disabilities? What role do those most intimately involved in providing care have in advocacy? Professor Amy Lutz, Ph.D., author of Chasing the Intact Mind, joins Amy Julia Becker to discuss:
- How the severely autistic and intellectually disabled were excluded from the debates that affect them most
- Controversy and misconceptions about sheltered workshops/14(c) programs
- The importance of meaningful relationships and community
- Building a caring and committed workforce of caregivers
- Listening to caregivers and families
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FREE RESOURCE: 10 Ways to Move Toward a Good Future (especially for families affected by disability)
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GUEST BIO
Professor Amy Lutz, Ph.D., is a historian of medicine at the University of Pennsylvania. Her research locates at the intersection of disability history and bioethics. She is a founding board member of the National Council on Severe Autism (NCSA) and the author of Chasing the Intact Mind and several other books. She lives outside Philadelphia with her husband and five children, including Jonah, her 25-year-old son with profound autism.
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CONNECT ONLINE
- Website: amysflutz.com/
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ON THE PODCAST
- Chasing the Intact Mind: How the Severely Autistic and Intellectually Disabled Were Excluded from the Debates That Affect Them Most by Amy Lutz, Ph.D.
- The Lancet Commission on the future of care and clinical research in autism
- Section 14(c) of the Fair Labor Standards Act
- United States Commission on Civil Rights 2020
- John Swinton
- Amy Julia’s essay about the spiritual lives of people with intellectual disabilities
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TRANSCRIPT: amyjuliabecker.com/amy-lutz/
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YouTube Channel: video with closed captions
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