Glass Half Full with Leslie Krongold, Ed.D.

An episode to catch everyone up on what’s been going on in the life of someone in their early 60s with a progressive health condition. Waning energy prohibits many of us for reaching all of the goals we’d like to achieve. It takes time to acclimate to a new normal and reassess which goals are most important and how best to achieve them dealing with new limitations. Foremost for

My guest for this Glass Half Full podcast episode is Patrick Regan. Patrick is a young man living in Alaska with SMA (spinal muscle atrophy) who uses AAC to communicate. We've gotten to know each other through online BORP classes -- Tai Chi and Pilates. Our communication previous to our Zoom podcast recording was through Zoom’s chat. Patrick is not able to speak and uses technol

I don’t know who coined the term movement is medicine, but it resonates for me. My early experiences with exercise were not joyful; grade school physical education was bad medicine. But once I started dancing with friends in high school – before carding and ID checks were mandatory – I experienced movement in a positive way. Shortly after college I started a yoga practice whi

February 28th is Rare Disease Day. Twenty-five to 30 million Americans live with a rare disease. For more facts and figures related to rare diseases, check the NORD website. This podcast episode catches up with Aditi Kantipuly, a physician and advocate, immersed in the rare disease community. As a young girl Aditi learned about a child born with osteogenesis imperfecta – a rar

The holidays can be difficult for most anyone but if you live with a chronic health condition and/or physical disability, the barriers to joy and festivity may increase. Four women engage in conversation about coping with the holidays -- Leslie Krongold with myotonic muscular dystrophy, Andrea Klein with collagen 6 congenital muscular dystrophy, Janice Laurence with Charcot Marie T

When to stop driving a moving vehicle? That is the question to ponder; is it a toss up between being a responsible adult or maintaining a sense of independence? For many people, this is a difficult choice. If you live in an urban or suburban location you may have many options available if you give up driving. For others, a car may be a necessity -- one needed to get to gainful empl

September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation. The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, hea

The lyrics to Don't Laugh at Me speak to anyone who has felt like an outsider. Whether or not you were bullied as a child, this song will likely resonate with you. Steve Seskin, the singer-songwriter, and his co-writer were first inspired by a young girl's experience of teasing in grade school. But, the song encompasses inequities experienced by those living with physical and deve

Liz Ann Kurdrna, Pilates instructor, feels like her emotional recovery from a rock climbing injury is ongoing yet "knowing that I have to show up for someone else…by teaching…it helps. It helps you uncover the stronger part of yourself." In this podcast episode, Liz Ann talks about her lifelong love of rock climbing as well as her participation in other outdoor activities su

Glenn Ribotsky, a Board member with the Western Neuropathy Association, shares his dramatic initiation as a patient into the world of peripheral neuropathy. Now, 18 years later he advocates and offers support to others experiencing the often, invisible pain of a neuropathy.