Vasculitis Visionaries

In VF's Vasculitis Visionaries' nineteenth episode, Ben is joined by Dr. Linda Wagner-Weiner, a Chicago-based pediatric rheumatology expert who is currently leading the construction of a brand new website devoted entirely to patients (and their families) with pediatric vasculitis. Listen in to learn about the challenges of building an all-encompassing website from scratch, her pers

In VF's Vasculitis Visionaries' eighteenth episode, Ben and Kaley are joined by Dr. Jessica Bloom, a pediatric rheumatologist and assistant professor of pediatrics at University of Colorado School of Medicine. The first pediatric rheumatologist to be selected for the VCRC/VF Fellowship, Dr. Bloom focuses on advancing evidence-based management of AAV in children. Listen in to l

Ben and Kaley will return with a new Vasculitis Visionaries episode in September. This is a special edition featuring a compilation of interview segments from Season 2 of the series.  They have selected some of the most exciting, engaging, and informative highlights from past episodes. Guests include Dr. Velma Mockett, Kalen Young, Dr. Leonard Calabrese, Dr. Sebastian Sattui,

In VF's Vasculitis Visionaries' seventeenth episode, Ben and Kaley are joined by Dr. Aurore Fifi-Mah, a clinical associate professor with University of Calgary's Division of Rheumatology in Alberta, Canada. A vasculitis researcher and patient advocate, Dr. Fifi-Mah has collaborated with and/or cofounded many organizations, including the Calgary Vasculitis Association, the Cari

In VF's Vasculitis Visionaries' sixteenth episode, Ben and Kaley sit down with Dr. Sebastian Sattui, the soon-to-be co-lead of the University of Pittsburgh Medical Center (UPMC) Vasculitis Center. Currently finishing up a vasculitis fellowship at the Hospital for Special Surgery in New York, Dr. Sattui was the recipient of the 2019 Vasculitis Clinical Research Consortium (VCRC)-Vas

In VF's Vasculitis Visionaries' fifteenth episode, Ben and Kaley are joined by Cleveland Clinic's Dr. Leonard Calabrese. He is both the head of Cleveland Clinic's Section of Clinical Immunology and the co-director of their Center for Vasculitis Care and Research. An immunologist by training, Dr. Calabrese works on a large number of topics, including HIV, Hepatitis C, and vasculitis

 In VF's Vasculitis Visionaries' fourteenth episode, Ben and Kaley sit down with Dr. Christian Pagnoux from Toronto's Mount Sinai Hospital. Founder of the Canadian vasculitis research group CanVasc, Dr. Pagnoux discusses ongoing research on disease, treatments, and patient outcomes with a focus on understudied vasculitides such as EGPA. He also highlights the uses of virtual d

Back for the second season, VF's Vasculitis Visionaries' thirteenth episode features Kalen Young, the Director of Research Affairs for the Vasculitis Patient-Powered Research Network (VPPRN). Join Ben, Kaley, and Kalen as they discuss COVID-19 vaccines, patient education initiatives, and research dissemination. Kalen also highlights VPPRN's work to ensure patient voices are he

In VF's Vasculitis Visionaries' twelfth episode, Ben and Kaley are joined by DADA2 experts Drs. Chip Chambers and Pui Lee. Deficiency of Adenosine Deaminase 2, or DADA2, is a rare genetic disease with symptoms resembling polyarteritis nodosa (PAN). However, the diagnosis and treatment for DADA2 are quite unique. In this episode Dr. Chambers, the founder and president of the DA

In the eleventh episode of VF's Vasculitis Visionaries, Ben and Kaley are joined by Dr. Velma Mockett, an Alberta-based mental health practitioner and licensed psychotherapist with more than 15 years of experience in the field. Dr. Mockett counsels patients on the grief and loss associated with chronic illness and uses her own experience with vasculitis to inform her work. In this