Décalés, Out of Sync

Feb 23 2024 127

Décalés, Out of Sync Podcast artwork

France + USA Récits de vie intimes autour du handicap mental, physique et psychique, Intimat talks about disability. (ENGLISH BELOW) 🇫🇷 Décalés est un podcast original auto-produit par Léa Hirschfeld, qui croit en le partage d'expérience comme outil fondamental à la compréhension du handicap. Comment se vit le sentiment de décalage au quotidien ? Comment influe-t-il sur notre lecture du monde ? Quelles solutions trouve-t-on face à l’adversité ? Que se passe-t-il quand il n'y a pas les mots ? Saison 1(FR) : frères et sœurs Saison 2 (FR) : en situation de handicap Saison 3 (FR) : parents Hors-série (FR) : productions pour des tiers OUT OF SYNC (ENG) : l’extension anglophone de Décalés, des histoires venues des États-Unis. (ENGLISH) 🇺🇸 My name is Léa Hirschfeld and you have landed on Décalés, Out of Sync - open conversations about life through the prism of disability recorded across France and the USA, a place to learn from each other, gain a sense of belonging and open the conversation to work together towards a more inclusive, dignified world. Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum. Season 1 (FR): siblings Season 2 (FR): people with disabilities Season 3 (FR): parents Hors-série (FR): productions for third parties OUT OF SYNC (ENG): stories from the USA by people with disabilities, parents, siblings, friends, professionals. Out of Sync could not exist without the support of the Villa Albertine (https://villa-albertine.org), a French netw ork for arts and ideas based across the United States, Zeno Mountain Farm (https://zenomountainfarm.org) and Unapei (https://www.unapei.org) , the French federation of associations representing and defending the interests of people with intellectual disabilities. Instagram : @decales_podcast (https://www.instagram.com/decales_podcast/) ♥️ Hébergé par Ausha. Visitez ausha.co/fr/politique-de-confidentialite pour plus d'informations.

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(ENG) #7 Grace - nothing down about Down syndrome

Feb 23 2024 58 mins

🎙️When I asked Grace what is was like to be a single mom raising a toddler in a teepee with no running water or electricity, she laughed and said she was lucky because Ian didn’t toddle very much. In fact, babies with Down syndrome tend to take it slower than most kids and as Ian grew, Grace made a point at taking everything slowly but seriously and to focus on life skills.A

(ENG) #6 Ila - the school of life

Jan 25 2024 70 mins

Today, on the sixth episode of Décalés Out of Sync, Ila and I talk about the school of life like you’ve never heard of it before. Ila is an occupational therapist and the co-founder of Zeno Mountain Farm, a camp for people with and without disabilities based in Vermont. As an occupational therapist, she helps people live independently. As a camp director and founder she offers

(ENG) #5 Isabelle - finding balance

Jan 11 2024 35 mins

*listen to Isabelle’s mother Krista in episode 1 and to sister Hannah in episode 3*🎙️Today on Décalés - Out of Sync, Isabelle talks about siblings relationships and the feeling of a parallel evolution with their twin Hannah who has cerebral palsy. It’s an interesting balance to find, they say, to know what we are responsible for, if we are supposed to stand up for the ot

(ENG) #4 Kate - life as an extrovert

Dec 28 2023 43 mins

🎙Today on Décalés - Out of Sync, Kate describes herself as so friendly and extroverted that social boundaries can be difficult to process. People with Williams Syndrome all share that outgoingness.She reflects on independence and the importance of taking the same steps as her peers. There have been obstacles but she feels lucky to have grown up in a time where “people with d

(ENG) #3 Hannah - learning is an experience.

Dec 14 2023 45 mins

*Listen to Hannah's mother in episode #1* 🎙Today on Décalés - Out of Sync, Hannah talks about embracing her full identity through theater, community and learning how to ask for help. The theater is where she feels most at home. “Nothing can be erased or edited on stage. I can come as I am, my mobility aids are just a part of my character and I am a part of the story, just

(ENG) #2 Will - shifting narratives

Nov 30 2023 35 mins

🎙️Today on Décalés - Out of Sync... what Will Halby and his family envisioned many years ago exists today as an alternate reality: Zeno Mountain Farm. The dream was for adults with and without disabilities to meet around theater and film projects. What started as a small non-profit in California became a year round camp community in Vermont that ensures all bodies and minds

(ENG) #1 Krista - the art of letting go.

Nov 16 2023 44 mins

🎙️Today on Décalés - Out of Sync, Krista talks about the art of letting go. Becoming a mother of twins at 35 inevitably rocks your world, and even more so when one of them suffers a brain injury at birth. As she entered the realities of parenting and disability, she sought for balance between problem solving mode and grief, leaning on her husband and standing up together, tr

(ENG) Décalés, Out of Sync - Trailer

Nov 15 2023 3 mins

My name is Léa Hirschfeld - you have landed on the trailer of Décalés, Out of Sync, an independent podcast of open conversations about life through the prism of disability. Embark with us on a journey across America, led by the raw, sincere voices of the people of Zeno Mountain Farm, parents, siblings, friends, and others I’ve met on the road in early 2023. Décalés is a Fre

Giulia et Isaac

Sep 20 2023 83 mins

🎙️Quand son fils Isaac a eu son accident, quand il n’en est pas sorti indemne, quand il a fallu tout réinventer, Giulia n’en était pas à son premier drame. Ce qui ne nous tue pas nous rend plus fort, disent certains. Ce qui ne nous tue pas nous abime, dit Giulia. C’est ça la vérité. Et c'est aussi un chemin vers la liberté.🎙️ Merci Giulia Foïs (en marge -

Elisabeth, Martin et Antoine

Sep 06 2023 61 mins

🎙 L’été, chez Elisabeth, on parle quatre langues : l’espagnol pour sa belle-fille cubaine, l’anglais pour son gendre américain, la langue des signes pour un de ses fils et le français pour les autres. Devenue orthophoniste et linguiste pour mieux comprendre les besoins de ses enfants, son histoire laisse imaginer un parallèle entre la construction subtile du langage