PPMD's Living Duchenne

For a lot of people fall is synonymous with football and for those in the muscular dystrophy community, that means Coach To Cure MD. Parent Project Muscular Dystrophy's nationwide initiative partners with the American Football Coaches Association (AFCA) to educate about Duchenne and Becker and raise funds for research. Every September high school and college coaches sport the “Co

Dystrophinopathy is not exclusive to males. Though rare, women can also be affected by the disease, which raises different kinds of questions, challenges, and discoveries. On this episode, Deb Jansen and Mariana Livingston join host Rachel Poysky to offer their thoughts and insights about the complexities of the way the disease manifests in women and what we can do to raise awarene

The good news: there is no wrong way to practice self-care. The even better news: self-care comes in all shapes and sizes; it’s infinitely customizable by you, for you! Our host Rachel Poysky sits down with Duchenne moms, Betty Vertin and Jill Castle for some candid conversation about the many paths to self-care empowerment.

Whether you’re a woman who is a carrier for Duchenne or are close to a family member or loved one with a carrier status, it’s important to put physical and emotional wellness in focus. On this episode, we’re joined by Trina Stelly and Mindy Cameron who talk candidly with host, Rachel Poysky about their experiences navigating a carrier status and what they find both rewarding

From siblings to grandparents to aunts and uncles and partners–a Duchenne or Becker diagnosis impacts across every family member, many of whom take on their own type of caregiving roles. Our host Rachel Poysky sits down with guests Susan Samuelson, Alyson Teal, and Hilary Becker who offer their unique insights on caring for a loved one with Duchenne and Becker, supporting primary

We're getting excited for PPMD's 2022 Annual Conference with this special BONUS EPISODE of Living Duchenne about making the most out of YOUR Conference Experience. Join our host Rachel Poysky along with special guests, Jessica Rownd, John Killian, and Linda Cripe as they share their insights and stories on what makes conference a positive, empowered, inspiring event for the entire

Ralph Waldo Emerson wrote: “It is a happy talent to know how to play.” Fun, joy, laughter, letting loose, and taking breaks from our routines to relax and play are all vital parts of physical, mental, and emotional health and wellbeing. On this episode Rachel sits down with Duchenne parent Colleen Labbadia and Physical Therapist Claudia Senesac to chat about the importance of m

Let’s face it, sometimes taking a yoga class or finding time to try meditation is not simply realistic in a family with Duchenne. Why follow the wellness rules when you can simply make your own? Duchenne parents Tiffany Herring and Kindann Fawcett join Rachel to talk about accessible, reasonable ways to incorporate nutrition and physical activity into your busy routines. Listener

“You’re doing great!” “Keep going!” “You’ve got this!” We all see the cheery, inspirational posts on social media, but maybe you find yourself thinking: “I don’t have this at all.” Not only is that okay, but guess what? You’re not alone. On this episode, Rachel leads a refreshing, lighthearted conversation about managing expectations when things look or feel

For some, counseling and therapy may seem a bit mysterious or even a little scary or overwhelming. The good news–it doesn’t have to be! On this episode, Rachel chats with guests Lauren Fritz (Duchenne parent and licensed counselor) and Maria McDonnell (Duchenne parent) as they share their individual experiences with counseling and how it has positively impacted their mental hea