The Secret Life of Parkinson's

Apr 25 2024 391
The Secret Life of Parkinson's Podcast artwork

The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ways we might not be able to express to family and friends.

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#101: Living with Parkinson's for 9 years

Apr 25 2024 29 mins  
In this episode, we bring back Dave Kolbe from Episode #11. Dave has had Parkinson's for 9+ years and is still living his best life! Hear the advice and tips he has to those of us who are newly diagnosed (or those who are years in!).

#100!!!!! Top Parkinson's Podcasts

Apr 17 2024 31 mins  
It's been over 2 years since we launched, "The Secret Life of Parkinson's". We recorded our 100th episode and are excited to share our top 5 most viewed episodes and the episodes the four of us learned the most from. Check it out! Thanks for viewing and following our journey! We are so grateful for all the viewers and appreciate all the comments. Keep them coming!

#99: Skeptical about taking Parkinson's medication?

Apr 10 2024 26 mins  
Check out our latest interview with Dr. Patel where we talk about MDS's approach to medication with their patients, their reaction to taking or not taking medications, and much more!

#97: Living with Parkinson's led them to Love

Mar 21 2024 18 mins  
In this episode, hear the love story of Allie and Steven. You may recognize them from #LitWithin or #InLoveWithParkinsons. While they lived over a thousand miles apart, Steven found Allie's blog, LitWithin, reached out to her, and the rest is history. Both living with Parkinson's, they met, fell in love, got married, and just recently, got DBS together - on the same day! In

#96: Why Physical Therapy is a must for Parkinson's

Mar 11 2024 9 mins  
I've been waiting all week to share this video! For those who watched my "live" video about elbow/shoulder issues, this is a MUST SEE! I never had a reason to go to a Physical Therapist, but my MDS recommended it when medication wasn't fully helping the pain. The results...let's just say I'm a believer in PT! I'm not a doctor, and I know everyone experie

#98: Dopamine and the Power of Socializing

Mar 11 2024 8 mins  
While socializing may not directly increase dopamine levels in Parkinson's patients in the same way that medication or deep brain stimulation does, the positive experiences associated with social interaction can indirectly contribute to dopamine release and have beneficial effects on symptom management and overall well-being. Therefore, go on that girls trip or boys trip! Take

#94: Parkinson's and Gut Health - Can Probiotics help you?

Feb 20 2024 40 mins  
In this informative episode, we learn from Martha Carlin all about poop (yes, poop), our gut, and it's relation to Parkinson's disease. Martha has been researching gut health since her husband was diagnosed with Parkinson's 20 years ago. Inspired by groundbreaking research from Dr. Filip Scheperjans in 2014, Martha founded The BioCollective, a research company focused o

#95: Did surgery trigger my Parkinson's?

Feb 17 2024 25 mins  
Tune in to hear our friend, Thalia, talk about her journey to Parkinson's. She went in for a heart transplant which she believes may have triggered the onset of Parkinson's. This disease is a complex neurodegenerative disorder with multifactoral causes, and not everyone who experiences trauma or surgery will develop Parkinson's as a result. But there is some evidence th

#93: Coping with Parkinson's arm pain and masked face

Feb 14 2024 15 mins  
In this episode, we talk about Jessica's approach to her new Parkinson's symptom (shoulder and elbow pain/tension) and tips on how Brian can exercise his masked face. We cover a few other random topics...not sure why, but this episode just made us laugh. Always good when have fun with your PD friends ;)

#92: Parkinson's and your hospital action plan

Jan 24 2024 11 mins  
Download ebook: https://www.parkinson.org/library/books/hospital-action-planOrder the book: https://www.parkinson.org/resources-support/pd-library/order-publicationsIf you have not ordered or downloaded this book from the Parkinson's Foundation, I suggest you do it today! It is filled with great information. Easy to read! There are pages you are supposed to tear out to bring wi