Foundation Fighting Blindness

Jan 24 2025 201 ep. 23 mins 3
Foundation Fighting Blindness Podcast artwork

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

  Science
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Eye on the Cure Podcast | Episode 80: Aniz Girach, MD

Jan 24 2025 26 mins  
January 24, 2025. Aniz Girach, MD, the chief medical officer at SpliceBio, talks to host Ben Shaberman all about the company’s emerging protein-splicing therapy for Stargardt disease which has received clearance from the FDA to move into a clinical trial.

Atsena to Launch Part B of Phase 1/2 Clinical Trial for XLRS Gene Therapy

Jan 09 2025 4 mins  
The Foundation is a founding investor in Atsena.

Eye on the Cure Podcast | Episode 79: Damon Lembi

Jan 05 2025 35 mins  
January 10, 2025. Damon Lembi talks to host Ben Shaberman about his journey as a college baseball star, father, and CEO of Learnit (a live learning platform), and how the diagnosis of an inherited retinal disease informs his leadership style, personal growth, and relationships. Damon is also a best-selling author and host of the Learn-It-All podcast.

ViGeneron Receives FDA Authorization to Launch Clinical Trial for mRNA Trans-splicing Gene Therapy for Stargardt Disease

Dec 19 2024 3 mins  
The company is also planning to conduct the clinical trial at sites in the EU.

Eye on the Cure Podcast | Episode 78: Dr. Sheldon Rowan

Dec 16 2024 40 mins  
December 20, 2024. Dr. Sheldon Rowan, a professor and researcher at Tufts University, talks to host Ben Shaberman about the impact of the glycemic index, microbiome, and diet on the development of age-related macular degeneration and optimization of overall retinal health. Dr. Rowan will also discuss his grant from the Foundation and the Free Family for studying diet and AMD risk.

SpliceBio Receives FDA Clearance to Launch Clinical Trial for Stargardt Disease Protein Splicing Therapy

Dec 15 2024 2 mins  
The company has also launched a natural history study of patients to inform the planned clinical trial.

Sepul Bio Launches Phase 2b Clinical Trial for USH2A RNA Therapy

Dec 11 2024 3 mins  
Known as ultevursen, the USH2A RNA therapy was licensed from ProQR.

Eye on the Cure Podcast | Episode 77: Dr. Bob Bell

Dec 03 2024 32 mins  
December 6, 2024. Bob Bell, PhD, chief scientific officer at Ascidian Therapeutics, talks with host Ben Shaberman about STELLAR, the company's Phase 1/2 clinical trial for its emerging RNA-rewriting therapy for Stargardt disease (ABCA4 mutations). Dr. Bell also provides overviews of Stargardt disease, the role of RNA in cells, and the advantages of RNA re-writing over other genetic

Atsena’s LCA1 Gene Therapy Licensed by Nippon Shinyaku for Markets in US and Japan

Nov 12 2024 3 mins  
The companies are planning a Phase 3 clinical trial for the promising gene therapy.

Eye on the Cure Podcast | Episode 76: The Lemay-Pelletier Family

Nov 11 2024 28 mins  
November 15, 2024. When the Lemay-Pelletier family from Montreal learned that three of their four children were losing vision from retinitis pigmentosa, they made the bold decision to spend 15 months traveling the world to give their kids as many visual memories as possible. Podcast host Ben Shaberman talks to the family about their many incredible adventures and the National Geogr