Myelopathy Matters

Jan 30 2024 52 ep. 33 mins
Myelopathy Matters Podcast artwork

Myelopathy Matters is the official podcast of Myelopathy.org, the charity for degenerative cervical myelopathy. It aims to bring the latest on living with, managing and understanding the condition, through expert guests from around the world. The show is hosted by Ben Davies (Neurosurgeon, Scientist and Founder of Myelopathy.org) and Iwan Sadler (Person with Myelopathy and Founder of Myelopathy.org). The show is produced byCarl Homer from Cambridge TV with logo designs by Iwan Sadler.

  Health & Fitness
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S5E2 - Myelopathy.org Research Award Winners 2023 - Kajana & Aditya

Jan 30 2024 31 mins  
Iwan and Ben are joined by the winners of the Myelopathy.org Research Award 2023 - Aditya Vedantam and Kajana Satkunendrarajah - for their investigation of how breathing is affected in DCM, with some stark findings and potential implications for our understanding of fatigue. The prize is awarded by the charity’s scientific steering committee to the best scientific study aligned

S5E01 - Targeting Early Diagnosis with James Whatley

Jan 08 2024 23 mins  
Happy New Year, This month Ben and Iwan hear a UK perspective on the challenges of early diagnosis. They are joined by James Whatley, an advanced physiotherapy practitioner from North London, to hear his perspectives on initial diagnosis and triage. This initial step in the pathway appears to be a critical and common focal point for global interventions to accelerate diagnosis.

S4E10 - Targeting Early Diagnosis with Rohil Chauhan

Dec 10 2023 28 mins  
In the first of a two part episode, Iwan and Ben speak to professionals tackling myelopathy’s greatest challenge: Diagnosis. Rohil Chauhan is a Physiotherapist working in New Zealand, who was inspired to look more deeply at what are the specific challenges faced by frontline professionals. Rohil also takes the time to answer some of your questions. #myelopathymatters

S4E9 -Importance of community and support with Sheila Thomas Duggan

Nov 07 2023 31 mins  
In this podcast episode, Iwan is flying solo. He interviews Sheila Thomas Duggan, a dedicated volunteer and administrator for myelopathy.org’s support group. Sheila shares her personal experience of living with DCM (Degenerative Cervical Myelopathy) and discusses how she finds it incredibly rewarding to give back and provide support to people facing similar challenges with myelop

S4E8 - 10 years of Myelopathy.org: Where next?

Oct 03 2023 31 mins  
Iwan and Ben pause for reflection, 10 years since they first came together to create Myelopathy.org (alongside Mark Kotter), and almost 5 years since the research priorities were established in DCM. The community and reach of the charity has grown significantly over this time, which has become a powerful platform for progress. However alongside opportunity, the size also brings ope

S4E7 - Core Information for Myelopathy with Irina Sangeorzan

Sep 11 2023 30 mins  
It’s a Myelopathy Matters Exclusive! Iwan and Ben are joined by Myelopathy.org researcher Irina Sangeorzan, to hear about the new Core Information Set. This forms part of a wider project called Shared DCM, and funded by the Evelyn Trust, to help people affected with DCM take a more active role in the decision making around their care. As Iwan likes to say, “Knowledge is Power�

S4E6 - A bus conversion on a mission with Jay Cantebrigge

Aug 03 2023 18 mins  
Iwan and Ben are joined by Jay Cantebrigge, a person living with myelopathy, to talk about his campaign “on borrowed spine” aiming to raise awareness of DCM. Jay is taking the campaign on the road, turning a bus into a mobile educational cafe! The project is at the early stages, and Jay is looking for help - financial or in kind. Find further information at https://www.gofundme

S4E5 - Should I have a disc replacement or fusion surgery?

Jul 05 2023 56 mins  
With expert opinion from Spine Surgeons Michael Fehlings, Rory Murphy and Valerie Schuermans, and the personal experience of Meghan Baxter, Iwan and Ben explore the role of cervical disc replacement (also known as cervical arthroplasty) surgery for Degenerative Cervical Myelopathy: what we know, and what we still need to find out.

S4E4 - A Role for Cerebrolysin? Novel Therapies in DCM with Ayush Sharma

Jun 06 2023 24 mins  
Iwan and Ben hear from Dr Ayush Sharma, Surgeon Scientist from Ambedkar Central Railway Hospital in India, on his trials exploring a role for Cerebrolysin (https://www.cerebrolysin.com) to help boost recovery after surgery for Degenerative Cervical Myelopathy. This is a recognised research priority.

S4E3 - Creating practice guidelines for myelopathy, with Chad Cook and RECODE-DCM

May 03 2023 24 mins  
At present, treatment for myelopathy varies widely. Although various surgical treatments are well known, there are currently no guidelines for the many non-operative domains of care (e.g. pre- and post-operative rehabilitation, pain relief, physiotherapy, nursing). In a powerful initiative led by Prof Chad Cook from Duke University, the RECODE-DCM Perioperative Rehabilitation Incub