Not Just Patients

Jul 22 2024
Not Just Patients Podcast artwork

Hello and welcome to Not Just Patients, a podcast where we break barriers to meaningful patient involvement in healthcare. 

We’re your hosts, Caitlin Rich and Clarinda Cerejo. We’re both rare disease patients and qualified patient experts. And we are so much more. 

Join us and our guests as we challenge patient stereotypes, highlight successful collaborations in healthcare, and share energizing tales of turning adversity into advocacy.

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Embracing Shared Decision-Making in Patient Care┃Dr. Victor Montori

Jul 22 2024 60 mins  
In this episode, we speak to Dr. Victor Montori about the importance of shared decision-making in healthcare. Dr. Montori is the Robert H. and Susan M. Rewoldt Professor of Medicine at Mayo Clinic. An endocrinologist, health services researcher, and care activist, he is the author of more than 750 peer-reviewed publications and is among the most cited researchers in clinical medici

Embedding Patient Perspectives into Clinical Research┃Robert Joyce

Jun 23 2024 59 mins  
On this episode, we talk to Robert Joyce about the critical role of patient involvement in clinical research and the various ways in which patients can bring rich perspectives to the research and development process.Robert has lived with chronic illness all his life, but following a traffic accident in 2014, he was left with debilitating symptoms. No longer able to work, Robert sta

Mobilising Meaningful Pharma-Patient Collaboration┃Bronwyn Lewis

May 20 2024 61 mins  
On this episode, we speak with Bronwyn Lewis, Global Head of Patient Engagement at Boehringer Ingelheim. Drawing on her 20+ years of experience across diverse roles in the pharmaceutical industry, Bronwyn offers deep insights into how the industry is perceiving and responding to the call for deeper patient engagement, the challenges and opportunities for better multi-stakeholder co

History and Evolution of Patient Engagement ┃Tamás Bereczky

Apr 19 2024 59 mins  
On this episode, we talk to Tamás Bereczky, PhD, about how patient engagement came to be, how it has evolved over time, and what the future will look like.Living with HIV since 2003, Tamás is a stalwart in patient advocacy, serving on various boards and committees, such as the European AIDS Treatment Group and European Community Advisory Board on HIV. He also conducts and publish

Introducing 'Not Just Patients'

Apr 02 2024 18 mins  
In this pilot episode, we introduce ourselves, our ideas and aspirations for the podcast, and what you can expect to get from listening.We are excited to bring this podcast to you and hope you enjoy it! Resources mentioned in the episode:- EUPATI Patient Expert Training ProgrammeHave feedback or suggestions for us? We'd love to hear from you!Website: notjustpatients.comLinkedIn: No