The Desperate for a Diagnosis Podcast with Laura Nozicka

Nov 18 2024 31 ep. 59 mins 3
The Desperate for a Diagnosis Podcast with Laura Nozicka artwork

Tired of the healthcare revolving door? Feeling dismissed, labeled, pigeonholed? Have you heard, "It's all in your head!" or "You don't look sick." Have you seen doctor after doctor begging to put a name to your symptoms? How long have you been seeking answers? Months? Years? This podcast walks through the journeys of patients who have successfully found a diagnosis as well as those who are still searching for answers. Healthcare professionals also tell stories from their side of the bedside highlighting challenges in the heallthcare system often preventing patients from getting a diagnosis.

  Health & Fitness
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30: Decoding ASXL Mutations: Hope and Advocacy in Rare Diseases, An Interview with Mom and Rare Disease Advocate, Laura Badmaev

Nov 18 2024 43 mins  
In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka interviews Laura Badmaev, a dedicated mother and advocate for children with ultra-rare genetic disorders. Laura Badmaev, founder and chair of the ASXL Rare Research Endowment Foundation, shares her journey and experiences with her son, Alex, who has Bohring-Opitz Syndrome, a rare genetic mutation. They dis

29: How Dr. Randy Cybulski Decodes Pain to Heal, Not Just Mask

Nov 05 2024 85 mins  
Dr. Randy Cybulski, sports chiropractor and longtime physician to athletes of all ages, discusses his unique approach to chiropractic care, and overcoming chronic pain, and pain due to injury. He also provides insight into treating conditions, the importance of questioning medical authority, and the role of PRP and stem cell therapy in healing. Dr. Randy also discusses the often-ov

28: One Physician's Take on Medical Gaslighting, Interview with Renowned Neurologist and Headache Specialist, Dr. Alan Rapoport

Oct 22 2024 75 mins  
In this episode of Desperate for a Diagnosis, Dr. Alan Rapoport returns to delve into the concept of medical gaslighting, where patients feel dismissed or misunderstood by healthcare providers. The discussion addresses the evolving complexities of modern medical practice, highlighting constraints faced by doctors, and the importance of patient history for diagnostic accuracy. The

27: Rare Pediatric Neurological Conditions: Alice in Wonderland Syndrome and More with Neurologist, Dr. Lauren Strauss

Oct 17 2024 52 mins  
In this compelling episode of the Desperate for a Diagnosis podcast, host Laura Nozicka welcomes Dr. Lauren Strauss, a renowned pediatric and adult headache neurologist, to explore the complexities and advancements in pediatric neurology. The conversation dives deep into diagnosing rare neurological conditions in children, including Spinal Muscular Atrophy (SMA) and Alice in Wonder

26: Rethinking "Difficult" Patients, Interview with Emergency Physician and Author, Dr. Joan Naidorf

Oct 09 2024 64 mins  
In this episode of the Desperate for a Diagnosis podcast, I have a heart-to-heart discussion with Dr. Joan Naidorf, an emergency physician, author, and speaker based in Alexandria, Virginia. We delve into the complex and often misunderstood dynamics between patients and physicians, especially when it comes to diagnosing difficult cases. Dr. Naidorf shares her extensive experience,

25: Decoding Chronic Headaches: Expert Perspectives on Diagnosis and Treatment with Renowned Neurologist, Dr. Alan Rapoport

Sep 29 2024 92 mins  
In this episode, join me for an extremely educational conversation with renowned neurologist and headache specialist, Dr. Alan Rapoport, a clinical professor of neurology at UCLA. Dr. Rapoport educates listeners about various headache disorders, including migraines, tension-type headaches, and cluster headaches. Dr. Rapoport discusses the complexities, symptoms, diagnosis, and trea

24: Battling the Pain – Judy’s Journey Through Shingles and Postherpetic Neuralgia: An Interview with Judy Wohlt

Sep 09 2024 50 mins  
In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka welcomes communications professional Judy, who shares her harrowing journey through misdiagnosis. Judy recounts her development of shingles, initially mistaken for cluster headaches, which eventually led to a painful condition known as postherpetic neuralgia. The discussion covers her myriad symptoms, incl

EP 23: Understanding and Managing Migraines with Neurologist and Certified Headache Specialist, Dr. Lee Peterlin, Pennsylvania Headache Center

Aug 13 2024 63 mins  
In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka engages in a comprehensive discussion with Dr. Lee Peterlin, a distinguished clinical neuroscientist and headache specialist. Dr. Peterlin delves deep into the complexities of migraines, addressing common questions about their causes, symptoms, and distinctions from other types of headaches. Dr. Peterlin e

EP 22: Saying “Yes, And” to Using Improv for More Effective Healthcare Communications and Leadership: Insights from Kelly Leonard, The Second City

Jul 30 2024 74 mins  
In this episode of Desperate for a Diagnosis Podcast, Kelly Leonard, Vice President of Creative Strategy at Second City and I discuss the exciting intersection of improvisation and healthcare. Who knew? We know there's very little funny about healthcare...well, that all depends how you look at it. But improvisational techniques and methodologies are surprisingly applicable to healt

EP 21: Menopause Management: Dr. Z Colette Edwards' Playbook for the Common and the More Surprising Symptoms During This Season of Life

Jul 19 2024 91 mins  
In this compelling episode of the Desperate for a Diagnosis Podcast, host Laura Nozicka warmly welcomes back Dr. Z. Collette Edwards. Dr. Edwards, a renowned board-certified physician with extensive training in health and wellness coaching, health equity, and integrative health, shares her profound insights into the multifaceted menopause journey. The conversation navigates throug