The Patient Voice Podcast

Mar 24 2022 1

The Patient Voice Podcast artwork

Our aim at Patient Voice Initiative is to ensure patient voices are seen, heard and valued in the Australian health system. But what is the patient voice and why is it important?Join us as we explore real experiences of health and healthcare through the people who most depend on it and how these stories can help us build better care for all.The podcast is hosted by the Patient Voice Initiative Chair and patient advocate, Jessica Bean, which means it is an opportunity to hear patients in discussion with another patient, rather than responding to questions from someone who does not live with the daily experience of being a patient.

Subscribe on Podcast Addict

How living with bowel cancer drove Nicole's advocacy

Mar 24 2022 58 mins

Nicole is a patient advocate and health consultant. When she was diagnosed with advanced bowel cancer in March 2017, she was told she would likely die within two years.Nicole then sought a second opinion, and found another medical team who were prepared to think in an innovative and personalised way about her health. Four years later, Nicole has had amazing results!When not in trea

Tanya Hall - The reality of living with heart disease

Mar 10 2022 32 mins

Tanya is the CEO and founder of Hearts4Heart, which she founded in 2011 through her own experience of living with heart disease.Hearts4Heart is a national organisation supporting educating and advocating for patients living with heart disease. Through Tanya’s commitment and advocacy, Hearts4Heart has grown exponentially and is now seen as an expert voice in the field of patient e

Agnes Nsofwa and her advocacy for sickle cell patients

Feb 24 2022 49 mins

After Agnes' daughter was diagnosed with sickle cell disease at 14 months old, she learned everything she could and soon discovered the limited treatment options that patients had access to.Since then, she's become an advocate for sickle cell patients. With each person that's diagnosed having such a different experience with the disease, Agnes knew that greater knowledge and inform

Loss, lessons, and a lifelong legacy - Rachael Casella's story

Feb 10 2022 47 mins

With Rare Disease Day coming up on the 28th of February, The Patient Voice Podcast is proud to share Rachael Casella’s story. Rachael is a campaigner and activist for genetic carrier screening, IVF education, and reproductive health. After losing her daughter Mackenzie at just 7 months old to spinal muscular atrophy type 1 (SMA), Rachael realised that genetic carrier screening co

Lisa Briggs a voice of change for lung cancer

Jan 27 2022 49 mins

Lisa was diagnosed with lung cancer soon after the birth of her second child in 2014. At the time, she joined a clinical trial to treat her lung cancer.After being aware of the limited options and access to treatments for lung cancer patients in Australia, Lisa began to work with the major players in the field, and advocate for access to medicines.She met with the federal health mi

Alex Parker shares her Cystic Fibrosis story

Dec 21 2021 43 mins

Alex Parker was born in country Victoria and diagnosed with Cystic Fibrosis at 6 weeks of age. She had a very normal childhood despite all the rigorous health routines to maintain her health.But in her early 20s, her health started to deteriorate and she was in and out of hospital with lung infections. The future looked bleak until she was able to access an innovative new medicine.