The Parkinson's Life Podcast

Feb 21 2024 514

The Parkinson's Life Podcast artwork

Hosted by online magazine Parkinson’s Life and supported by Parkinson's Europe, this free monthly podcast explores the reality of life with Parkinson’s – and shares ideas on how to live well with the world’s fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons. parkinsonslife.eu

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Tackling key questions about Parkinson's and sialorrhea (drooling)

Feb 21 2024 32 mins

In this episode, we focus on sialorrhea. Also known as drooling, this is a common symptom experienced by people with Parkinson’s. UK-based David Bateson, who was diagnosed with the condition in 2015, explains how sialorrhea has impacted his speech, working life and interactions with others. He is joined by Dr Francesca Morgante, a neurologist based at St George’s, University o

How to manage 'off' periods in Parkinson's

Nov 28 2023 36 mins

Following our previous episode on what to expect with ‘off’ periods in Parkinson’s, this episode focuses on potential management methods. Canada-based Barbara Salsberg Mathews, who was diagnosed with the condition in 2020, shares her personal strategies for tackling ‘off’ states and the impact these have had. She is joined by Dr Silvia Rota, an Italian neurologist an

What to expect with 'off' periods in Parkinson's

Nov 22 2023 32 mins

In this episode we focus on ‘off’ periods – when Parkinson’s medication is not as effective as it should be, and symptoms become more difficult to manage. US-based Bill Bucklew shares how his ‘off’ periods have evolved since he was diagnosed with the condition in 2012, and how they play a role in his daily life. Joining him is Dr Valentina Leta, a neurologist based in

What you need to know about apomorphine pump treatment for Parkinson’s

Apr 19 2023 29 mins

In this episode, we find out what it’s like to manage daily life with an apomorphine pump. Apomorphine is a type of liquid dopamine agonist that is primarily used to treat people living with a more ‘advanced’ stage of Parkinson’s. UK-based Bob Taylor explains how the treatment has helped him adjust to his “rollercoaster” journey with the condition, since he was diagnos

Freezing, moving and cueing: understanding gait and Parkinson's

May 25 2022 30 mins

In this episode, we explore gait impairment – a common symptom of Parkinson’s that can involve slowness, muscle stiffness and freezing – and how it impacts people living with the condition. Our first guest is David Little, who lives in Carlisle, UK. Having previously worked as a firefighter, David was diagnosed with Parkinson’s back in 2005. David has experienced first-hand

Getting involved in Parkinson's research

Apr 28 2022 44 mins

This episode explores what it means to take part in Parkinson’s research – from finding out more about clinical trials, to completing surveys about life with the condition. Our first guest is Amelia Hursey, who lives in London, UK. Amelia recently joined the European Parkinson’s Disease Association – the only European Parkinson’s umbrella organisation – as Research Mana

Women and Parkinson's: the research gap

Apr 13 2022 33 mins

This episode delves into the gender gap in Parkinson’s research. It’s estimated that three million women worldwide are living with the condition – but are their specific needs being properly addressed in scientific studies? It’s a topic that is important to our guests, Dr Annelien Oosterbaan – a physician-researcher from the Netherlands – and retired family physician D

Women and Parkinson's: health and wellness

Mar 30 2022 31 mins

An estimated three million women around the world are living with Parkinson’s. But historically, their specific needs and experiences have been neglected – leading to disparities in diagnosis, treatment and medication. In this episode, Dr Lucía Ferro joins us from Barcelona, Spain. Diagnosed with Parkinson’s three years ago, she has since become passionate about raising awar

Breaking the silence on impulsive and compulsive behaviours

Feb 23 2022 32 mins

The more we’ve talked to people living with Parkinson’s, the more we’ve learned about the impact of compulsive and impulsive behaviours. A potential side effect of dopamine agonists (that is, commonly prescribed Parkinson’s medications that mimic dopamine in the brain), these might include compulsive gambling, shopping or hypersexuality. In this episode, UK-based Vicki Dill

Everyday life after DBS surgery

Jan 26 2022 27 mins

In our second episode on deep brain stimulation, two guests discuss what life is like after having DBS surgery – from symptoms and charging the device, to check-ups and body image. Our first guest is Peter Schielzeth, a 58-year-old retired Chief Operating Officer, who now does pro bono work for a start-up. Peter lives in Germany with his husband, as well as his pet dog Basti. Pet