NETWise

Oct 17 2024 40 ep. 39 mins 44
NETWise Podcast artwork

Being diagnosed with an uncommon cancer like a neuroendocrine tumor (NET) can feel isolating or overwhelming. Listen in as the NET Research Foundation (NETRF) speaks with experts and patients who will help us to understand NET diagnosis, treatment, and everything in between. NETWise is for everyone, from newly diagnosed patients to longtime survivors as well as caregivers and family members. This is your guide to learning, listening, knowing, and being NETWise.

  Health & Fitness
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NETWise Episode 39: What Could Immunotherapy Mean for NENs?

Oct 17 2024 32 mins  
Lately, there’s been a lot of talk about immunotherapy, which has transformed treatment for patients with some kinds of cancer. So far, patients with NETs and NECs have largely been excluded from these developments. But there’s hope that the benefits of immunotherapy could one day extend to NENs. In this episode of NETWise, we’re going […]

NETWise Episode 38: Rural Care

Sep 17 2024 42 mins  
Whether or not a patient has access to care is one of the most important factors in how their cancer journey plays out. It is crucial for timely diagnosis and effective treatment of neuroendocrine neoplasms. And when you live in a rural place, that access can be complicated. We often talk about how important it […]

NETWise Episode 37: Uncommon Neuroendocrine Neoplasms (NENs)

Jul 22 2024 28 mins  
Neuroendocrine neoplasms (NENs) can arise in many locations throughout the body; they can grow rapidly; and they can occur under unique circumstances. In this episode of NETWise, we talk through some of the more uncommon locations – and situations – where neuroendocrine neoplasms arise. This episode is devoted to some of those more uncommon situations. […]

Episode 1: What You Need to Know About NETs & NECs – Updated Episode

Jun 16 2024 42 mins  
Tune into this episode of NETWise as we define and explain how neuroendocrine cells become neuroendocrine tumors (NETs). We take a deep dive into understanding prognosis, defining stage and grade of NETs and the “upside-down” nature of NET primaries and metastases. We discuss the signs and symptoms of NETs and the frustration of misdiagnosis. NET experts address the ongoing con

NETWise Episode 35: Histotripsy

May 17 2024 22 mins  
In the past few months, there’s been a lot of buzz in the NET community about histotripsy. This newly-approved procedure holds a lot of promise for treating NETs, and may prove to be even more exciting in the future. In this episode of NETwise, we’re going to tell you everything we know about this new […]

NETWise Episode 34: Young Adults Living with NETs: Updated Episode

Apr 10 2024 49 mins  
In this episode of NETWise, we talk about the experiences of young people living with NETs. This is an update to an episode that was originally published in 2020. A special thank you to Dr. Aman Chauhan, a medical oncologist who leads the University of Miami Neuroendocrine Cancer Program and Dr. Jaydira Del Rivero, a […]

NETWise Episode 33: The Power of Knowing: Mortality & End of Life

Feb 14 2024 36 mins  
When one is diagnosed with an illness, like NETs, mortality can come to the forefront. Even if your NET journey presents a trajectory of being chronic and is stable, it is not uncommon to have thoughts about disease progression and mortality. There is also a lot of stigma and discomfort in talking about end of […]

NETWise Episode 32: Pheos & Paras (updated episode)

Jan 22 2024 33 mins  
Some of the rarest, most complex, and difficult NETs are known as pheochromocytomas and paragangliomas. This is an updated version of an episode that first aired in 2021. A special thank you to Dr. Erik Mittra Chief of Nuclear Medicine and Molecular Imaging at Oregon Health and Science University for his expert assistance with this […]

NETWise Episode 31: 2023 Year in Review

Dec 20 2023 24 mins  
Research is at the very core of what we do at NETRF. We believe it is the key to discovering cures and more effective treatments for neuroendocrine cancers. In this episode of NETWise, we share some of the most important developments in NET research that happened in 2023, and look back on the progress made […]

NETWise Episode 30: Understanding Fatigue & NETs

Nov 14 2023 35 mins  
If you’re dealing with NETs, you likely have encountered fatigue in various forms. The spectrum of fatigue spans from temporary and inconvenient to persistent and debilitating. It can be a source of frustration, stress, and, at times, a feeling of isolation, as it may not be readily apparent to others. Despite its prevalence, fatigue often […]