The CARRA Podcast

Dec 30 2024 8 ep. 19 mins 1

The CARRA Podcast artwork

If you’re a rheumatologist, a pediatric rheumatologist, a researcher or a patient/caregiver living with a pediatric rheumatic disease, you need to know about the Childhood Arthritis and Rheumatology Research Alliance (CARRA). We are doctors, researchers and patients all working together to prevent, treat and cure pediatric rheumatic diseases and related autoimmune diseases.

In each episode, we will interview a member of the CARRA community to hear research updates, explore new ideas and learn how we can all work to create a world free of limitations for children with pediatric rheumatic diseases and related autoimmune diseases.

The CARRA Podcast is hosted by Claudette Johnson.

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CARRA Live at ACR

Dec 30 2024 9 mins

In this live episode recorded at the CARRA Reception at ACR in Washington, D.C., Claudette Johnson interviews Dr. Stacy Ardoin, the president of CARRA. Their interview highlights some of the most exciting developments in pediatric rheumatology research today – from using the CARRA Registry to conduct comparative effectiveness research to determine which drug works best for which

The Burden of School-Related Concerns with Dr. Mia Chandler

Sep 09 2024 12 mins

For kids managing a rheumatic disease, school can be a frustrating cycle of missed lessons and makeup work. While a 504 Plan for special accommodations can certainly help, families living with pediatric rheumatic diseases know that school-related challenges are inevitable. There is very little evidence about the burden of school-related issues and the exact barriers that kids with

Pediatric Scleroderma with Dr. Kathryn Torok

Jul 17 2024 27 mins

This episode focuses on scleroderma, a disease that the host of the CARRA Podcast was diagnosed with at nine years old. To help explain what the disease is all about, we turn to Dr. Kathryn Torok, Associate Professor of Pediatrics and Clinical and Translational Science. Dr. Torok is the director of the Pediatric Scleroderma Clinic at UPMC Children's Hospital of Pittsburgh, where sh

The View from a High Schooler

Apr 04 2024 16 mins

Have you ever wondered what it’s like to be a kid with a rare autoimmune disease? In this special episode, the host of The CARRA Podcast, who is a teenager living with a rare autoimmune disease, interviews another teenager who has a rare autoimmune disease about their experiences with school, sports, friends, and medical treatments. They also share their frustrations, hopes and n

Mental Health Part Two: Exploring Solutions

Mar 07 2024 23 mins

Kids with rheumatic and autoimmune diseases rates are at greater risk of developing anxiety and depression. In a special two-part series on mental health and mental health awareness, The CARRA Podcast explores how kids living with autoimmune diseases can face additional mental health issues. In this second episode on mental health, we explore how researchers are working to provide

Mental Health Part 1: Understanding the Problem

Feb 08 2024 29 mins

It's no secret that mental health challenges are on the rise for children and teenagers, but imagine being a kid with a complex, chronic health condition. In a special two-part series on mental health, The CARRA Podcast explores how kids living with autoimmune diseases can face additional mental health challenges. The first episode takes a look at this pervasive problem, and in the

What is a Registry?

Jan 19 2024 17 mins

In this episode, you will learn what a registry is, the roles that registries play in research, and how patients and families can help support them. In the second episode of The CARRA Podcast, Claudette Johnson talks with Dr. Mary Beth Son, who is the Co-PI of the CARRA Registry. Dr. Son is Clinical Chief of the Division of Immunology and Section Chief of the Rheumatology Program a

What is the Childhood Arthritis and Rheumatology Research Alliance (CARRA)?

Nov 06 2023 18 mins

Meet a pediatric rheumatologist who helped pioneer collaborative research in pediatric rheumatic and related autoimmune diseases. Dr. Yukiko Kimura helped create a collaborative research network called the Childhood Arthritis and Rheumatology Research Alliance (CARRA) with a small group of dedicated physicians working in pediatric rheumatology. From the very beginning, they partner