The Generation Lyme Podcast

Jul 12 2023 19 ep. 54 mins 3
The Generation Lyme Podcast artwork

The Generation Lyme Podcast shares information and insights through personal stories to help people better understand and manage Lyme disease and other chronic illness experiences. Covering a wide variety of relevant topics, including relationships, treatments, mindset, lifestyle, and more, we raise awareness and show people in our community that they're not alone. Generation Lyme is a community built to empower people facing Lyme disease. We host online Meet-Ups several times a week for patients, parents, partners, and supporters. Find us online at https://genlyme.org.

  Health & Fitness
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Communicating About Lyme Disease - Ep 19

Jul 12 2023 58 mins  
There's so much to say about Lyme and other tick-borne diseases. As individuals and as a community, we fight hard to explain what we're going through, what Lyme disease is, what we need for things to get better, and a lot more. Combined with complex social dynamics that come up when you get sick, plus potential personal communication issues that people with Lyme often have

How to Set Boundaries When You Have Lyme Disease - Ep 18

May 08 2023 53 mins  
Has Lyme disease made it harder for you to set & maintain boundaries? Has it complicated your relationships with people and made it harder to communicate and feel heard by the people in your life? If so, you're not alone--and this episode is for you. We talk about our experiences setting, communicating, and changing boundaries through our Lyme journeys, and we share tips t

Why Lyme Stories Matter - Ep 17

Mar 26 2023 57 mins  
Has another person's Lyme story helped you in your journey? Has a story of any kind (a favorite movie, tv show, book, etc.) helped you get through a hard time? If so, you're not alone. Join us for this incredible conversation about how stories have shaped and changed our lives. We share how sharing our own Lyme stories has helped us heal and find community—and why we'

Reflecting on Recent Lyme News, Treatment Plans, & Our Progress Together - Ep 16

Feb 24 2023 54 mins  
Around times of illness, reflecting can bring all kinds of emotions. Some phases bring heartbreak. Others are cause for celebration. In every part of our journey, it can be helpful for us to reflect. Sometimes, we have to step back to see how we're moving forward. Other times, stepping back to reflect helps us see the whole picture. Whatever comes up for you when reflecting (or

Change is hard. So how do we navigate it? - Ep 15

Jan 15 2023 54 mins  
Many things in life can make us (and our loved ones) change. Lyme disease is one of them. So what do we do, how do we feel about it, and how can we navigate it? This episode covers *many* of the changes we have gone through and how we feel about them: treatments (herbs, antibiotics, SOT), lifestyle (alcohol, school), relationships (so much info for supporters!), perspectives (minds

Coping When Lyme Makes Life Feel Out Of Control: "What Are We Gonna Do Without Bagels?!" - Ep 14

Dec 05 2022 56 mins  
Have you ever struggled with control issues (either your own or imposed on you?) If so, you're not alone. Control issues are extremely common in the Lyme/chronic illness/disability communities (and so many others), yet they aren't talked about nearly as much as they should be. This episode tackles a huge topic we deal with on a daily basis in a variety of ways, covering everything

Let's Talk About Vulnerability: Asking For Help & Sharing Stories - Ep 13

Nov 03 2022 61 mins  
When you have Lyme disease (or any chronic illness), vulnerability is an everyday part of life. Still, embracing your vulnerability on an emotional level can be challenging. In this episode, we discuss our personal journeys with vulnerability: how it's challenged us, helped us heal, and what we recommend to people facing similar situations. This episode features Rivka Savage, Brook

Gen Lyme Day 2022! We Talk About Compassion & Answer Your Questions - Ep 12

Oct 13 2022 52 mins  
In this special episode, Jesse Ruben, Brooke Stoddard, Haley DiBiase, and Jennifer Hoffmann (the Gen Lyme Board) meet for the SECOND-ever in-person, live recording of The Generation Lyme Podcast to talk about Generation Lyme Day, a brand new holiday to celebrate the people of the Lyme community. We chat about the monthly topic - compassion - as well as answer some questions se

This. Article. Stinks: Roasting the Daily Mail FAIL - Ep 11

Sep 14 2022 49 mins  
If you read and were upset by the recent Daily Mail article about Spoonies on TikTok (no, we won't bother linking it), check out this episode for some relief. Sometimes, there's nothing better than a good (and productive!) roast with friends. If you have a chronic and/or invisible illness or disability, whether or not you choose to share your experience online: we believe you. You'

Self Care: A (Surprisingly?) Hot Topic for the Gen Lyme Community! - Ep 10

Aug 22 2022 59 mins  
For our community, self-care isn't luxury; it's survival. When self-care is our monthly topic at Gen Lyme, our community feels some type of way--and has a lot to say about it! In this episode, we discuss what self-care means to us, why it's both triggering and essential, and how we feel about reclaiming the phrase from an influencer-centered wellness industry. This episode features