The Secret Life of Parkinson's

Oct 09 2024 118 ep. 19 mins 406
The Secret Life of Parkinson's Podcast artwork

The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ways we might not be able to express to family and friends.

  Health & Fitness
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#119: "Together for Sharon" - Parkinson's patient advocate

Oct 09 2024 23 mins  
One of the biggest Parkinson's advocates I know is George Ackerman. George's mom, Sharon, was living with Parkinson's for years before anyone ever knew. The last 4 years of her life, George was his mother's caretaker and learned more about the world of Parkinson's than he ever anticipated. Since her passing, he has has been dedicated to driving advocacy to find

#118: Parkinson's Community: My YOPD ladies are here!!!

Sep 18 2024 30 mins  
WOW, WOW, WOW! What a weekend! Our Parkinson's non-profit, the 5KforJK, had our 4th annual walking event this past weekend (September 15, 2024) in Columbus, OH. Erika came from Florida (for the 3rd time) and Jill came to Ohio for her 1st 5KforJK (and her first time to Ohio) all the way from Washington State! Straight from Erika and Jill - "community is everything...meeting

#117: Body Temperature and its potential effect on Parkinson's

Aug 27 2024 32 mins  
If you are into learning more about the gut, check out this episode. We brought Martha Carlin back to talk about more research she is doing on the GUT! This time, she's researching the effects of body temperature and Parkinson's. It's still in the works, but man is it interesting to hear her talk about. While I may not understand all the scientific terms, I learn and un

116: What is Sundowning?

Aug 19 2024 13 mins  
This was a new term to me, but I know a lot of others are probably aware. But take a minute to listen to Dr. Patel discuss sundowning and how a carepartner or family member can help.Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

#115: A Young-onset Parkinson's advocate - Allie Signorelli

Aug 19 2024 41 mins  
If you are on Instagram and have PD, you probably have seen, "imstillallie". Brian and I had the opportunity and priviledge to interview Allie Signorelli, a Young-onset PD powerhouse. Her career background happens to be in the non-profit space - doing events and fundraising for Alzheimer's. Even though she worked in the Neurodegenerative space as an advocate/event coord

#111: Life with a Parkinson's parent - a teenagers perspective

Jul 22 2024 19 mins  
Don't forget, you can also check out our video podcast on YouTube: https://www.youtube.com/@thesecretlifeofparkinsonsMeet my daughter, Kate Krauser, as she brings honesty and humor to life with a Parkinson's mom...and advocate.My twins were just 9 years old when I was diagnosed. Long before I was diagnosed though, Kate, at the age of 7 and 8, was already "caring" fo

#113: Overcoming Challenges with Parkinson's exercises

Jul 22 2024 19 mins  
We have my daughter Kate for one last episode! She joined me at the gym earlier this month and boy was she exhausted! this episode, we talk about the benefits of going to a gym and how to overcome challenges and barriers we put in front of exercising. Apathy and fatigue in PD patient definitely play a big part, so listen to some of the ways we overcome those barriers.Advertising In

#110: The Ultimate Online Resource for Parkinson's...coming soon!!

Jul 16 2024 32 mins  
Even though most people tell you "Don't google Parkinson's" after you're diagnosed, it's hard not to. So when we do, we are filtering through a sea of resources. Great resources, might I add! But sometimes I have a specific question that doesn't require a call to the doctor, or I'm finally ready to look into clinical trials, or I want to read about a

#109: Parkinson's and the Hospital - changes are happening

Jul 08 2024 38 mins  
Dr. Benjamin Walter joined us from the Cleveland Clinic to talk about a very important initiative that he has been working on: when in the hospital, people with Parkinson's should be able to receive their medications at their specific times and that the staff and pharmacy are notified what drugs NOT to administer. I can't thank Dr. Walter and The Parkinson's Foundation

#108: Easy Movement in Bed - Sheets for Parkinson's Comfort

Jul 02 2024 26 mins  
If you're living with Parkinson's and have trouble sleeping like I do, I have a solution for you: bed sheets that make moving around EASY! A few months back, Melissa recommended these sheets to our group. After realizing I was getting 'stuck' when tossing and turning at night, I decided to give them a try—along with their pajama set. Tune in to the podcast to hear