The Beautifully Rare Podcast

Nov 18 2024 3 ep. 51 mins 1

The Beautifully Rare Podcast artwork

Sam and Brynne live a Beautifully Rare life. Join them as they discuss their experiences living with complex CHD, SMA, and other unique challenges they have had to navigate as a family. If you are looking to discover a life beyond the barriers that life gives you to access one of joy and peace, this podcast is for you. They will discuss what it's like living with SMA, their journey with their son Cillian who is living with half of a heart, their faith, parenting, inter-able relationships, and everything in-between.

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Episode 3: Cillian's Story (Part 1)

Nov 18 2024 64 mins

Join us for Part 1 of Cillian's story as we discuss what it was like receiving a life changing diagnosis, how the impossible was made possible journeying to Boston Children’s, and helpful advice for parents prepping for an extended ICU stay.This episode is sponsored by Atlantic Insurance Group. Get your FREE insurance quote using THIS LINK.To get your copy of Brynne's book refere

Episode 2: Blessing in Disguise

Nov 03 2024 43 mins

Curious about Brynne’s experiences in living with a neurological disease? Join Sam and Brynne on episode 2 of “The Beautifully Rare Life” Podcast where they will be talking about how she was diagnosed, difficulties she had in accepting such a diagnosis at a young age, how this difficulty led her to doing clinical research on the psychology of disability, how this led her to f

Episode 1: New Beginnings

Oct 19 2024 46 mins

In Episode 1, “New Beginnings” we interview Sam and learn about how his time in the Marines helped shape his mentality to help lead his family through a year long ICU, his path to sobriety, being an Executive Director of Heart Warrior Ministries, what it means to be Cillian's father, and more!