In Sixteen Years of Endometriosis

Dec 08 2024 133 ep. 64 mins 34

In Sixteen Years of Endometriosis Podcast artwork

Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing “did-that-really-just-happen?!” endo stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time! (2) Amy leads amazing interviews with renowned excision surgeons, subject experts, and endo advocates worldwide! Remember, the info presented here is educational info only and NOT medical advice.

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135. The Challenges of Managing Endo and Cancer as a Black Person. Part 2: Endo, with Lyssette Horne.

Dec 08 2024 67 mins

Amy speaks with Lyssette Horne about: -their perspective on the myriad of obstacles endometriosis patients face in receiving adequate care -their personal experience with endometriosis Who is Lyssette Horne? Lyssette Horne (she/they) is a black, queer, and chronically ill artist, activist, and documentary filmmaker. Lyssette is a fierce advocate for mental health and

134. How Low Self-Worth Impacted My Endometriosis Experience

Dec 01 2024 80 mins

Amy and Brittany talk about how low self-worth has impacted their experience with endometriosis. We talk about: -the untrue stories we told ourselves about our appearance and productivity and the negative effect that had on our lives -how society taught us those stories through ableism, ageism, fatphobia, and other systems of oppression -how much our lives have improved no

133. An Algorithm for Phenotyping and Treating Chronic Pelvic Pain with Dr. Maurice Chung

Nov 16 2024 63 mins

Today Amy speaks with Dr Maurice Chung about: -the study he co-authored called “A Pain Desensitization Algorithm for Phenotyping and Treating Chronic Pelvic Pain” -the details of this algorithm for trying to establish a patient’s pain generators to reduce pain -nerve blocks for pelvic pain and the role of the bladder in pelvic pain. Who is Dr Maurice Chung? Dr.

132. The Challenges of Managing Endo and Cancer as a Black Person. Part 1: Cancer, with Lyssette Horne.

Nov 03 2024 59 mins

Amy speaks with Lyssette Horne about: -their experience with ovarian torsion, skin, and breast cancer. -some of the tools and practices Lyssette used to cope during these difficult times. -the ways endometriosis and cancer has changed their body, and how they are learning to find acceptance with them. In Part 2, Lyssette shares about their experience with endometriosis

131. Finding Peace with a Devastating Disease

Oct 29 2024 36 mins

Listen to 2 chapters from Amy’s audiobook. In this episode: -Amy briefly shares what her book “Finding Peace with a Devastating Disease” is about. -Amy shares about the challenges of producing her audiobook as a chronically ill and dynamically disabled person. -Listen to chapter 2 “It’s Like Being Upset the Sky is Blue” and the prologue “Is Endometriosis a De

130. Consensus on Routine Pelvic Ultrasound for Endometriosis with Dr. Wendaline VanBuren

Oct 20 2024 69 mins

Amy speaks with Dr Wendaline VanBuren about: —the 2024 publication called The Society of Radiologists in Ultrasound Consensus on Routine Pelvic Ultrasound for Endometriosis that Dr. VanBuren was a senior author on. —the goal of the consensus, who participated, and the vision for implementation in the future. — the difference between a Routine Pelvic ultrasound, Augme

129. Navigating the Emotional Storm of Endometriosis with Social Worker Yesenia Villalta

Oct 07 2024 51 mins

Amy speaks with Yesenia Villalta about: -the stories we tell commonly tell ourselves about our bodies and endometriosis-tips for processing the anger we often feel toward this disease-the importance of getting curious about the shame we feel and how to move toward self-acceptance and love. Who is Yesenia Villalta? Yesenia Villalta is a bilingual and bicultural social worke

128. Vaginal Estrogen for Vaginal and Urinary Symptoms with Urogynecologist Dr. Jocelyn Fitzgerald

Sep 22 2024 61 mins

Amy speaks with Dr Jocelyn Fitzgerald about vaginal estrogen. We talk about: -what it is, how it’s different from systemic estrogen, and what options are available. -the safety information and benefits for genital urinary syndrome of menopause which include urinary and vaginal symptoms. -its use specifically for patients with endometriosis. Who is Dr. Jocelyn J. Fitzg

127. Living with Endometriosis – A Chat with an Endo Warrior from Pakistan

Sep 08 2024 34 mins

Amy speaks with an endo warrior from Pakistan. We talk about: -cultural and societal factors that can impact the ability to receive adequate care-what makes her upset about the endometriosis standard of care-what has helped improve her quality of life physically and emotionally Who am I speaking with? She is a 26 years old girl from Pakistan suffering from endometriosis. I

126. Neuropelveology and the Role of the Nerves in Symptoms with Dr. Ana Sierra

Aug 25 2024 70 mins

Today Amy speaks with Dr. Ana Sierra about: -how neuronavigation and neuromodulation can help patients in pain -how nerve involvement may play a role in bladder symptoms and leg pain -what nerve sparing surgery is and why is it important Who is Dr. Ana Sierra? Graduated from the Autonomous University of Querétaro, she began her studies in minimally invasive gynecolo